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As the incoming Government restates its commitment to creating a National Care Service, new CSA analysis reveals the massive postcode lottery for care facing the public today   

July 23, 2024

Your chances of getting vital life changing care if you need it vary hugely across England in what is a shocking postcode lottery. This is the stark finding of research by the Care and Support Alliance (CSA) which represents more than 60 leading charities campaigning for decent care for all those who need it and their unpaid carers. 

The research shows that across England, you have the greatest chance overall of having your request for care accepted if you live in North East, and the lowest if you are in the West Midlands. However, within all regions there are big variations between local authorities: if you need care and support to help you live your daily life, your chance of having your request refused varies from 85% in some local authority areas to 12% in others. In London for example, the rates of requests being rejected by local authorities within just a few miles of each other range from 84% to just 20%.  

The greatest variation within regions is in London, where there is an enormous 64% gap between local authorities in the rate of requests for care being declined. The least variation is in the East Midlands, but this still stands at a significant 31%. 

Click here to find out about care in your area

 

The CSA says that these extreme variations are the result of a perfect storm at a national level of rising demand for care, rising costs, regionally specific recruitment and workforce challenges and strained local authority budgets, all compounded by years of delays to social care reform.  

In addition, there are local factors which can amplify the variation. Some councils are better able to raise revenue locally than others, to help them compensate for the cuts in central Government funding they have experienced over the years. Added to this, the way funding is allocated to local authorities hasn’t been updated for some years, meaning the allocations no longer always reflect the needs of the current local population. Local authority duties to provide social care are set out in law and a person with a given level of need and resources ought to receive a broadly similar response everywhere, but at the moment this is clearly far from the case. 

The analysis is released as a new CSA tool is launched which shows people how national government inaction on social care is having a real impact in their area, inviting them to join its campaign: https://act.careandsupportalliance.com/page/151615/action/1  

The CSA is urging the new Government to urgently get to grips with the desperate problems individuals and families are facing accessing social care. It must act quickly so older and disabled people can get the care they need. Good social care supports people to live their lives: to get up and out, work, see the people they love, be independent. Yet currently at least 2.6 million* people go without the care they need. 

 

Government ignoring social care would be a ‘betrayal’ of British people, warn charities and 24,000 people

June 21, 2024

Today more than 24,000 people and 54 organisations are calling on the next Government to make sure it prioritises reform and funding for social care, following decades of political inaction.

In an open letter, addressed to all party leaders, organised by the Care and Support Alliance, which represents over 50 of Britain’s leading charities, highlights decades of underfunding and lack of action has left care in a shocking state. The letter says:

“Millions of older and working aged disabled people and their carers desperately need a social care system that works, and a failure to act would be a betrayal.

“For social care it’s time for actions, not just words. Good social care supports people to live their lives. To get up and out, work, see the people they love, be independent, but currently at least 2.6 million people go without the care they need.”

The Care and Support Alliance (CSA) chairs, Caroline Abrahams, Charity Director at Age UK; Emily Holzhausen, Director of Policy and Public Affairs at Carers UK, and Jackie O’Sullivan, Acting CEO at Mencap said:

“Over the years we’ve had far too much of politicians of all colours over-promising & under-delivering on social care reform, and we can’t go through that all over again. We know that good social care is transformational and it’s tragic to see older people and working age adults deprived of opportunities to live well, and unpaid carers under unbearable pressure to fill yawning service gaps.

“A failure by the next Government to address this long-standing issue would be a betrayal of all those who rely on care and their families, while also setting up the NHS to fail. The prize from successful social care reform is too important for the issue to be put in the ‘too difficult box by our politicians, it’s time for them to front up and act.”

Read the full letter:

Dear Party Leader,

Show Us You Care.

We’re writing to you to say for social care it’s time for actions, not just words.

Good care supports people to live their lives. To get up and out, work, see the people they love, be independent as long as possible. Yet currently, at least 2.6m people go without the care they need. Social care provision has slipped far below an acceptable level and is having very real consequences for millions of older and disabled people and their unpaid carers.

Promise that you will make change happen in the next Parliament, come up with sustainable funding and support the social care workforce. Millions of older and working aged disabled people and their carers desperately need a social care system that works, and a failure to act would be a betrayal.

The Care and Support Alliance of over 50 charities, and everyone who has joined this letter, agree that to make social care work for people, we need a government that:

1. Addresses the shortfall in current social care spending and puts in place a long-term funding commitment to meet current and future demand. Piecemeal pots of funding will not deliver the change, services or stability the sector and care users need.
2. Addresses the core issues facing the workforce, including pay, conditions, career development and skills recognition, as part of a new, fully funded social care workforce strategy.
3. Enables local authorities to tackle social care assessment and carer’s assessment waiting lists through enhanced dedicated funding.
4. Develops a new National Carers Strategy including investing in carers’ breaks, introducing paid carer’s leave, and urgently reviewing Carer’s Allowance and other social security benefits carers can claim.
5. Removes social care charging entirely for working-aged disabled adults so they don’t have to part-fund their care from state benefits designed to pay for daily living costs, like food and heating.

If you are in the privileged position of leading the next government you could transform the lives of millions of older and disabled people and their carers. You could ensure our care workforce is recognised and valued.

It’s time for actions, not words: please Show Us You Care – commit to reform social care once and for all.

From

1. Kari Gerstheimer, CEO, Access Social Care
2. Leo Sowerby, Chief Executive, Affinity Trust
3. Caroline Abrahams CBE, Charity Director, Age UK
4. Jolanta Lasota, Chief Executive, Ambitious about Autism
5. Deborah Alsina MBE, Chief Executive Officer, Versus Arthritis
6. Kathy Roberts, Chief Executive, Association of Mental Health Providers
7. Clive Parry, England Director, ARC England
8. Andrew Langford, Chief Executive, British Association for Music Therapy
9. Adam Micklethwaite, Director, Autism Alliance UK
10. Professor Martin Green, Chief Executive, Care England
11. Karolina Gerlich, Chief Executive Officer, The Care Worker’s Charity
12. Kirsty McHugh, CEO, Carers Trust
13. Helen Walker, Chief Executive, Carers UK
14. John Cowman, Chief Executive, Chartered Society of Physiotherapy
15. Libby Herbert, CEO, Colostomy UK
16. Sally Tsoukaris, General Secretary, Civil Service Pensioners’ Alliance
17. Frances Lawrence, CEO, Dementia Carers Count
18. Dr Hilda Hayo, Chief Executive, Dementia UK
19. Anna Galliford, Chief Executive, FitzRoy
20. Steve Veevers, Chief Executive Officer, HFT
21. Toby Porter, Chief Executive, Hospice UK
22. Jane Townson, CEO, Homecare Association
23. Mark Henderson, CEO, Home Group
24. Ruth Owen OBE, Chief Executive, Leonard Cheshire
25. Jacqueline Cannon, CEO, The Lewy Body Society
26. Matthew Reed, Chief Executive, Marie Curie
27. Jackie O’Sullivan, Acting CEO, Mencap
28. Tanya Curry, CEO, Motor Neurone Disease Association
29. Nick Moberly, CEO, MS Society
30. Catherine Woodhead, Chief Executive Officer, Muscular Dystrophy UK
31. Karen Walker, CEO, Multiple System Atrophy Trust
32. Neel Radia, Chairman, National Association of Care Catering
33. Caroline Stevens, Chief Executive, National Autistic Society
34. Professor Vic Rayner OBE, CEO, National Care Forum
35. Kate Henderson, Chief Executive, National Housing Federation
36. Jacob Lant, CEO, National Voices
37. Georgina Carr, Chief Executive, The Neurological Alliance
38. Sarah Miller, Chief Executive, Papworth Trust
39. Caroline Rassell, Chief Executive, Parkinson’s UK
40. Rachel Power, Chief Executive, Patients Association
41. Rebecca Packwood, Chief Executive, PSP Association
42. Helen Wildbore, Director, Care Rights UK
43. Mark Atkinson, Director General, Royal British Legion
44. Matt Stringer, Chief Executive Officer, Royal National Institute of Blind People (RNIB)
45. Richard Kramer, CEO, Sense
46. Peter Beresford, Co-Chair, Shaping Our Lives
47. Kate Steele, CEO, Shine
48. Nik Hartley OBE, Chief Executive, Spinal Injuries Association
49. Jonathan Senker, CEO, VoiceAbility
50. Diane Lightfoot, CEO, Business Disability Forum
51. Rhidian Hughes, CEO, Voluntary Organisations Disability Group (VODG)
52. Neil Riley, Chairman of Trustees, The ME Association
53. Dr Mary-Ann Stephenson, Director, Women’s Budget Group
54. Donna Covey CBE, Interim CEO, The Advocacy Project

Along with 24,009 campaigners.

CSA calls for removal of charging for working-age disabled people

June 14, 2024

Remove social care charging entirely for working-aged disabled adults, so they don’t have to part-fund their care from state benefits designed to pay for daily living costs, like food and heating.

One of the specific asks of the Care and Support Alliance, representing over 50 social care and disability charities, is for the next Government to remove social care charging entirely for working-aged disabled adults. Here Jackie O’Sullivan, co-Chair of the Alliance, and acting CEO of Mencap explains why.

It is a common misunderstanding that social care, which supports people to live independently, is free for all those who need it.  Sadly, this is not the case. The vast majority of people who need support with daily tasks such as washing, getting dressed, eating or going shopping, will pay for their care. At the CSA, we have been campaigning for social care to be properly funded, so that everyone who needs it can access the care they need without worrying about the cost.  

Much of the debate around social care charging revolves around questions of how much older people should be asked to contribute from their assets and/or savings. However, many working-aged disabled adults are also charged for their social care – even where they have no assets and receive no income other than benefits.  For this group, the money they receive in benefits can be clawed back by local authorities to part-pay for their social care down to a minimum level or Minimum Income Guarantee (MIG). This MIG sets out the minimum amount of income per week a person must be left with: for older people this is at least £228.70, for adults between the ages of 25 and pension credit age it is £110.60 and for adults aged 18-24 it is just £87.65.

To compound the unfairness, employment income is exempt, which means that the people who rely on benefits are the ones who are penalised the most. 

Despite most people wanting to, not every disabled person is able to work, and there aren’t enough employment support programmes to help tackle this.  So, given the low rates of employment among disabled people (only 5% of people with a learning disability are in work), this policy causes hardship and poverty.  To compound matters, Minimum Income Guarantee rates have only been uprated twice since 2016. Meanwhile, Local Authorities have to spend time and money on assessing people, chasing payments – and even prosecuting people. Imagine how scary this is for people! You’re on a very low income and struggling to pay the bills as it is and then suddenly, you are slapped with a huge bill and threatened with court if you don’t pay up.      

A relatively easy win for any new Government would be to end this sort of charging altogether – and that is why it is included in our campaign asks alongside other measures which will directly benefit older people, unpaid carers and care workers.

 

50+ Charities Urge Party Leaders to Prioritise Social Care 

June 5, 2024

For social care, it’s time for action, not words. 

Decades of underfunding and lack of action have left social care in a shocking state, and at least, 2.6m people can’t get the care they need. The Care and Support Alliance (CSA) which has more than 50 member organisations, is asking party leaders to prioritise social care in the next parliament.

When it works well, social care changes lives. It enables people to live the lives they choose: to socialise, work and volunteer, and to stay independent. It allows unpaid carers to balance caring with other aspects of their lives. 

“Since being granted 24/7 care, my daughter was able to leave to go to university. I’ve joined a community choir. I go swimming and to the gym. I can make plans with friends. I feel like I have a future as opposed to the years that I had spent barely existing.”

– Rachel 

Everyone should be able to access the care they need to live happy and fulfilling lives. Real leadership and action from the next government is the only way that millions of older people, disabled people and their carers can get it.  

Read the full text of the open letter:

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